Dina and Dr. Dravet in California 2003. (Dr. Dravet lives in Paris) She is the sweetest and most compassionate doctor you could ever meet. She has dedicated her entire life to the study of the syndrome which was named after her.
I was honored to present Dr. Dravet with a scrapbook of "Dravet Kids" from all over the world. She never had children, she considers all "Dravet Kids" like her own.
This is a large poster which was presented to Dr. Dravet at the international conference in 2006. Sydney is scetched on the top left side. We were VERY honored for her to be on the poster!
Sydney and Dr. Laux in Chicago. Dravet families come from all over the United States to see Dr. Laux, we are lucky to only be 6 hours away. We stay at the Ronald McDonald house when we are in Chicago. It is such a great opportunity for us!
Dr. Guerrini was a wealth of information at the "Not another Moment Lost" Epilepsy Conference in CA. He came from Italy.
"seizures" "Dravet" "Dravet syndrome" "Dravet's" "Dravet's Syndrome" "Epilepsy" "SMEI" "smei" "severe myoclonic epilepsy" "Severe myoclonic epilepsy of infantcey""Apraxia" "speech" "therpy" "Homeschool" "Kentucky" "cincinnati" "Global Apraxia" "apraxia of speech" "Speech delay" "epilepsy" "Dr. Laux" "Dr. Dravet" "Charlotte Dravet" "Ideal League" "ataxia" "orthos" " orthotics" "Make a wish" "thoughts" "store" "hope for Sydney" "Sheriff" "deputy" "KCSO" "Service Dog" "four Paws for ability" "4 paws for ability""4 paws 4 ability" "Northern Kentucky" "sign Language" "Sign Exact English" "Steripental" "Clobazam" "Frizium" "topomax" "Depokote" "Ativan" "Angle Flight" "Donate" "Terminal" "Syndrome" "MAE" "Myoclonic" "Myclonic Astatic Epilepsy" "Atypical absence" "tonic Clonic seizure" "Drop Seizure" "WCPO" "9 on your kids side" "ABC news" "abc" "homebirth" "home birth" "Lorazapam" "Complex partail" "Partial" "seizure alert" "seizure alert dog" "Michael Freeborn" "Areotec" "Give Kids the World" "Disney World" "fundraising" "Medicaid" "Resources" "Sydney Nelson" "Sadie Nelson" "Rooney" "Midozalom" "hopeforsydney" "Dina Nelson" "Eric Nelson" Kenton county" "kenton county KY" "SCN1A" "genetic mutation" "SCN1A gene test" "Athena Labs" "Dina McMahon" "hope for sydney" "tates creek" "Lexington" "infantile spasm" "syndrome" "disorder" " LGS" "LKS" "Dogs" "Chincinnati Childrens Hospital""CCMCH" "Mickey Mouse"" Aviation" "Freeborn and Associates" " Chicago""seizures" "Dravet" "Dravet syndrome" "Dravet's" "Dravet's Syndrome" "Epilepsy" "SMEI" "smei" "severe myoclonic epilepsy" "Severe myoclonic epilepsy of infantcey""Apraxia" "speech" "therpy" "Homeschool" "Kentucky" "cincinnati" "Global Apraxia" "apraxia of speech" "Speech delay" "epilepsy" "Dr. Laux" "Dr. Dravet" "Charlotte Dravet" "Ideal League" "ataxia" "orthos" " orthotics" "Make a wish" "thoughts" "store" "hope for Sydney" "Sheriff" "deputy" "KCSO" "Service Dog" "four Paws for ability" "4 paws for ability""4 paws 4 ability" "Northern Kentucky" "sign Language" "Sign Exact English" "Steripental" "Clobazam" "Frizium" "topomax" "Depokote" "Ativan" "Angle Flight" "Donate" "Terminal" "Syndrome" "MAE" "Myoclonic" "Myclonic Astatic Epilepsy" "Atypical absence" "tonic Clonic seizure" "Drop Seizure" "WCPO" "9 on your kids side" "ABC news" "abc" "homebirth" "home birth" "Lorazapam" "Complex partail" "Partial" "seizure alert" "seizure alert dog" "Michael Freeborn" "Areotec" "Give Kids the World" "Disney World" "fundraising" "Medicaid" "Resources" "Sydney Nelson" "Sadie Nelson" "Rooney" "Midozalom" "hopeforsydney" "Dina Nelson" "Eric Nelson" Kenton county" "kenton county KY" "SCN1A" "genetic mutation" "SCN1A gene test" "Athena Labs" "Dina McMahon" "hope for sydney" "tates creek" "Lexington" "infantile spasm" "syndrome" "disorder" " LGS" "LKS" "Dogs" "Chincinnati Childrens Hospital""CCMCH" "Mickey Mouse"" Aviation" "Freeborn and Associates" " Chicago" " IVIG" "Keto" " Ketogenic Diet"
" IVIG" "Keto" " Ketogenic Diet"
