Hi Dina!
I have a stepson that was diagnosed with Dravets syndrom. FINALLY! He is 7 years old and has seizures many many times a day. I want to know everything there is to know about this syndrom.
Please email me Saragadd@hotmail.com
Thank you so much for sharing your sweet daughters with us for a few days. I never knew when I arrived that I would fall in love with someone as special as Sydney. She is a true gift from God.
Our prayers will be with you as you move forward on your mission. I hope to stay in touch and maybe see you at the next camp.
Hello! I found your information through hugsandhope.org! I was going to write Sydney and Sadie each a letter and send a few small things. Could you possibly tell me what sort of things Sadie likes (cartoon characters, animals, etc.), if she likes anything in particular? Thank you!
My son was diagnosed with dravets syndrome last year and up til now I have been trying to stay strong. I find it hard to have faith that there is a god out there that can cure my baby. I die after every seizure that lasts an hour or more. I just need someone to talk to about this as I feel alone in my struggle. How do you deal with something this big? How can it get easier to watch your baby go through these things and know there is nothing that you can do to help them? renagade24541@yahoo.com
Hi Dina
It's Deidra from the nail salon. Sydneys website is beautiful. I will be contacting you this week so we can set up a schedule. My email address is warnerdeidra@yahoo.com.
Lookig forward to talking to you
Deidra
I understand how you feel as a mother. I do not have a child with disability but we ministered to children with developmental challenges. I would like to tell you that your two little girls are blessed because lots of the villagers are helping them. But here in Palawan, Philippines only limited help to these type of children, because even our government is not supportive enough.
You will be included in our Dawn Watch prayer every day.
My prayers are with your family always. I hope that all the efforts Stacey (Momma) and all of us at Because We Care will pay off and help your family and those beautiful little girls. See you all again soon..
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